Our Stories

     
Hi everyone, meet chocolate faced Darcie. She is my beautiful 20 month old daughter. I was diagnosed CMV positive when I was 6 months pregnant. It is thought that I caught it when I was 4 months pregnant. I was so unwell & nobody could work out what was wrong with me.  After blood tests, it was confirmed that I contracted CMV whilst I...
Ava_P_CMV
I found out at my 20 week scan that something wasn't quite right with my little girl. We were told her cerebellum in her brain was missing, and that this would affect her mobility and she would have learning difficulties, and we were referred to UCH hospital in London.    That crushed me - her brain. There's nothing they can do...
Charlie
CMV has left four-year-old daughter Charlie facing a future without her hearing. Charlie’s Mum Lindsey had never heard of CMV during either of her pregnancies, yet she contracted the common virus which has caused her little girl to battle severe deafness.  Although never actually being diagnosed at birth, Charlie was a small birth weight...
Alfie-CMV-Story
I wanted to share my CMV story, this is my wonderful little boy Alfie. I had a normal pregnancy and labour, I had Alfie at 11.30 at night and the next morning got him ready to take home. The doctor came round he had a purple rash under his skin an enlarged liver and spleen and was shaking has his blood sugars were low. We had to stay for more...
Clemmie was born 3 weeks early while my husband was serving with the British Army in Afghanistan. Up to that point, I’d had a normal pregnancy with no adverse scans or distinctive illness. Clemmie was delivered by c-section due to a transverse lie and was not initially in any distress. At birth her heart & lungs failed; she had CPR for 4...

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Our Stories

We noticed Ruby wasn't responding to sound when she was about 18 months old. My GP said she was fine and said I was a worrying first time mum. Without the support of our GP, we paid... Read more
Charlie
I found out in October 2010 i was pregnant with my second child :)   It was a planned pregnancy and we were over the moon when we got our positive test. At the time I was a cleaner... Read more

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