Our Stories

     
Four weeks before the due date of our second child, Mylo, a breech scan showed he had excessive fluid on his brain and his weight had dropped dramatically from previous growth scans. Initially, the prognosis was poor and we were advised of the many life-limiting conditions he could be born with and, subsequently, we were...
Hi everyone, meet chocolate faced Darcie. She is my beautiful 20 month old daughter. I was diagnosed CMV positive when I was 6 months pregnant. It is thought that I caught it when I was 4 months pregnant. I was so unwell & nobody could work out what was wrong with me.  After blood tests, it was confirmed that I contracted CMV whilst I...
Luca was born on the 7th of January, 2007, just one day early, weighing 5lbs 6oz. Normal delivery and everything seemed ok. It wasn't until Luca was just over 6 months old (July 07) that I was noticing there was something wrong. Luca wasn't meeting his milestonesI s i.e. couldn't sit up, couldn't crawl, was making some noises and could stand...
On the 27th June 2006, when Christian was born I remember the sheer delight on my husbands face, as we had our boy. He would be Eve's little brother who would be 2 the following day. Within 24 hours it became apparent that our new arrival was poorly.  He had developed jaundice and was moved to special care.  He was given light therapy...
Clemmie was born 3 weeks early while my husband was serving with the British Army in Afghanistan. Up to that point, I’d had a normal pregnancy with no adverse scans or distinctive illness. Clemmie was delivered by c-section due to a transverse lie and was not initially in any distress. At birth her heart & lungs failed; she had CPR for 4...
Jamie-CMV
Hello, my son’s name is Jamie and he is 14 months old.  He was born with congenital CMV. Pregnancy wise, everything was normal, I had 5 scans, all fine... It was only 3 weeks before having my son that I got a sore throat but it was only during the nights though!! Strange!! I went to docs about it but was told it was just a virus so I...

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Our Stories

Katie, Clara's mum, says .... 30 weeks into my pregnancy with my second child I was informed in a phone call that I had contracted CMV in pregnancy. I wasn't given any more information... Read more
It was my first pregnancy and it was all rather exciting, choosing names, all the tiny little clothes, and we’d been so looking forward to having the 20-week scan, desperate to get a... Read more

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