Our Stories

     
So here's our story - I'm from the UK. I fell pregnant with my first baby back in 2015, I was over the moon everything seemed to be going fine and smoothly until my 20 week scan. I was just looking forward to find out whether I was having a little girl or boy, my instincts were saying girl. However at this appointment we didn't find out, but we...
Ava_P_CMV
I found out at my 20 week scan that something wasn't quite right with my little girl. We were told her cerebellum in her brain was missing, and that this would affect her mobility and she would have learning difficulties, and we were referred to UCH hospital in London.    That crushed me - her brain. There's nothing they can do...
Elliot_CMV
This is my story of the effects of CMV and little boy Elliot.  I was 16 and pregnant, everything seemed to be going well, apart from being young and scared... 29 + weeks I went to see the midwife, and she booked me in for a growth scan as my bump was small. She told me it wouldn't really be anything to worry about. I went for...
  In 2015 we lost our daughter Leia to cmv. This is Leia. At 22 weeks I was diagnosed with CMV and Leia had Congenital CMV (passed through the placenta).   Most people have flu like symptoms, I had none. I will always have CMV, as long as I'm healthy it will stay dormant. My OB said you can be tested but you have to ask. My reply...
This is our Evalyn Rose, she was a long awaited baby.  My husband and I were told we could not have any more children due to fertility issues, we tried a round of fertility treatment which failed so decided to give up, time went on and we moved county, houses and jobs and it was then I found out I was pregnant! ... shocked! The pregnancy...
Mia
Hello, this is Mia, she is 6 months and 2 weeks old and I got diagnosed with cmv when I was 6 months plus pregnant. It was a horrible time we only found out as I got really poorly and could not get out of bed. I had to have loads of growth scans and scans on Mia with her brain and spleen. Several doctors said Mia had no signs of cmv in the womb...

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Our Stories

Matilda – Mighty in Battle. The meaning of the name Matilda is "mighty in battle". So, when our second daughter was born on September 23rd, 2012, it wasn't any coincidence that we... Read more
Luca was born on the 7th of January, 2007, just one day early, weighing 5lbs 6oz. Normal delivery and everything seemed ok. It wasn't until Luca was just over 6 months old (July 07) that... Read more

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