Our Stories

     
Dawn has always wanted to write a book -  her daughter is now 23 and this is what she says 'This is a true and short story about a Mother's special journey bringing up her daughter.  This is a raw insight into my world and how I raised a child with CMV, Autism, Deafness and many other complex needs. It is written in my own words...
We found out in January 2017 just after Gabe’s first birthday that he had Congenital CMV.  I had a great pregnancy and a delivery with no problems. However he was born with tiny purple spots on his face and we were kept in overnight for observation – although no mention that it could be CMV. As the weeks went by Gabe started to smile and...
In November 2011 we found out we were expecting our second child. We were so happy and excited to be completing our family. I had a dream, trouble free pregnancy just like I had had with my son. I did not have one day of illness. Everything was fine at our 20 weeks scan and our 4D scan at 28 weeks. I enjoyed my pregnancy and we all looked...
Jamie-CMV
Hello, my son’s name is Jamie and he is 14 months old.  He was born with congenital CMV. Pregnancy wise, everything was normal, I had 5 scans, all fine... It was only 3 weeks before having my son that I got a sore throat but it was only during the nights though!! Strange!! I went to docs about it but was told it was just a virus so I...
Noah was born on 30th January 2009 after a fairly unremarkable pregnancy and a fairly normal delivery (even with the cord round his neck!) He failed his newborn hearing screening test but we and the examiner put it down to congestion and arranged a retest. Following two retests and still no response in his left ear, they referred us to the...
Katie, Clara's mum, says .... 30 weeks into my pregnancy with my second child I was informed in a phone call that I had contracted CMV in pregnancy. I wasn't given any more information and so I googled, and what I found terrified me. We were referred to foetal medicine but, in the interim, which was only 5 days but felt like 5 years,...

Pages

     

Our Stories

Luca was born on the 7th of January, 2007, just one day early, weighing 5lbs 6oz. Normal delivery and everything seemed ok. It wasn't until Luca was just over 6 months old (July 07) that... Read more
Everything had been going fine with my pregnancy until the 18-week scan. Then I was told I had my dates wrong and they put me back by 5 weeks, originally it was August 15th, now it was... Read more

Registered charity no: 1171773