Our Stories

     
This is our Evalyn Rose, she was a long awaited baby.  My husband and I were told we could not have any more children due to fertility issues, we tried a round of fertility treatment which failed so decided to give up, time went on and we moved county, houses and jobs and it was then I found out I was pregnant! ... shocked! The pregnancy...
Lewis was born 3 weeks early on 23rd December 1997 following a normal healthy pregnancy. The labour was not easy, but relatively quick being 4 hours in total but he was in distress and was very nearly a c section delivery. I went into early labour due to an infection.  He was born with the petechial rash which we were told was because...
Ours is a relatively simple story, so whilst it is great that the media portray worst case scenarios, it's good to realise that the number one effect is hearing loss, which is the only thing that Ava was affected with as a result of CMV. Ava was our second born daughter in May 2011. My pregnancy was fairly complicated from the outset with...
Chloe
On the 20th January 1999 our lives changed forever. Our second daughter Chloe was born after a very difficult pregnancy and poor intrauterine growth. She was imediately taken to the SCBU. She was a poor feeder, could not control her body temperature, had a large liver and black spots and jaundice. All were put down to prematurity, but I had a...
From day 1 to 15 months old. My girl Violet.   Born on the leap year 29th February, full term at 39 weeks, weighing 5lbs7oz. Severely to profoundly deaf. Now weighing... well, I have no idea, but she wears 6-9 months clothes.Back when we first got her diagnoses of CMV at 4 months old, I was very active on facebook groups but when...
We noticed Ruby wasn't responding to sound when she was about 18 months old. My GP said she was fine and said I was a worrying first time mum. Without the support of our GP, we paid privately at the Portland Hospital in London to have a hearing test. We were given hearing tests and the Portland Hospital ran blood tests. They also went back...

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Our Stories

Lewis was born 3 weeks early on 23rd December 1997 following a normal healthy pregnancy. The labour was not easy, but relatively quick being 4 hours in total but he was in distress and... Read more
Katie, Clara's mum, says .... 30 weeks into my pregnancy with my second child I was informed in a phone call that I had contracted CMV in pregnancy. I wasn't given any more information... Read more

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