Our Stories

     
Katie, Clara's mum, says .... 30 weeks into my pregnancy with my second child I was informed in a phone call that I had contracted CMV in pregnancy. I wasn't given any more information and so I googled, and what I found terrified me. We were referred to foetal medicine but, in the interim, which was only 5 days but felt like 5 years,...
Chloe
On the 20th January 1999 our lives changed forever. Our second daughter Chloe was born after a very difficult pregnancy and poor intrauterine growth. She was imediately taken to the SCBU. She was a poor feeder, could not control her body temperature, had a large liver and black spots and jaundice. All were put down to prematurity, but I had a...
Renae_Donald_1
My pregnancy was fine up until 20 weeks when I went for my ultrasound.  They noticed there was no fluid around my baby and I had actually lost my waters at 18 weeks pregnant. Not knowing what the problem was, they began all the tests which all came back fine.  Days went on been monitored every day, consultants telling me not to hope...
Mike’s birth was nothing but dramatic, the moment my waters broke they were thick with meconium. I was allowed to labour but the doctors struggled to keep a good trace on Mike’s heart and so he was born by emergency caesarean section. In the seconds he arrived into the world, the delivery room was filled with firm shouts of “he’s covered in a rash...
I guess I had a pretty typical childhood with some exceptions.  Here is what my mother has to say: “Kristen was born 10:58am on April 5th, 1982 weighing 6lbs 1oz after a full term, non-eventful second pregnancy.  I was 33 at the time.  When she was first brought to me I noticed her skin was covered with little red dots.  The...
Jamie-CMV
Hello, my son’s name is Jamie and he is 14 months old.  He was born with congenital CMV. Pregnancy wise, everything was normal, I had 5 scans, all fine... It was only 3 weeks before having my son that I got a sore throat but it was only during the nights though!! Strange!! I went to docs about it but was told it was just a virus so I...

Pages

     

Our Stories

Hi, I am Alicia Parks, I am very happy. Despite all my problems, I am very socially aware, alert young lady, and very mischievous. My mum and dad are Mandy & Neil. (I cannot write but I... Read more
From day 1 to 15 months old. My girl Violet.   Born on the leap year 29th February, full term at 39 weeks, weighing 5lbs7oz. Severely to profoundly deaf. Now weighing... well, I... Read more

Registered charity no: 1171773