Our Stories

     
My daughter was born with congenital CMV. I live in the U.S. and I had never heard of CMV before my pregnancy, nor had any of my friends or family who had normal pregnancies. Throughout my entire pregnancy, doctors and nurses could see there was something wrong in my ultrasounds but could not tell me what it was until around my 35th week of...
Noah was born on 30th January 2009 after a fairly unremarkable pregnancy and a fairly normal delivery (even with the cord round his neck!) He failed his newborn hearing screening test but we and the examiner put it down to congestion and arranged a retest. Following two retests and still no response in his left ear, they referred us to the...
Braden-10days-old
I was 14 weeks pregnant when my husband showed me a full torso rash that he had. I was already aware that my immunity to Rubella had dropped so sent him off to the Doctors straight away. We were told to quarantine ourselves for a few days and then a week later we got the results back that my husband had contracted CMV. The Doctors had gone...
So here's our story - I'm from the UK. I fell pregnant with my first baby back in 2015, I was over the moon everything seemed to be going fine and smoothly until my 20 week scan. I was just looking forward to find out whether I was having a little girl or boy, my instincts were saying girl. However at this appointment we didn't find out, but we...
baby_Oscar_shiningstar
After trying for a baby for two years, we luckily became pregnant with out first child just two days before we signed the paperwork to undergo IVF treatment. A lucky miracle I call it. I'd spent so much time looking into fertility and how difficult getting pregnant can actually be! I'm also a midwife of eleven years, with experience mostly...
Our names are Dawn Bean, 43 and Daniel Hunt, 37. We are lucky to be the proud parents of Joseph (Joey) Hunt, 2 (02.01.2015) who has a super sister, Daisy, 14 and a brilliant brother, Oliver 13. We all live in Hailsham, East Sussex. I'm a teacher and Danny is a contracts supervisor for a mechanical heating and ventilation company. Unfortunately...

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Our Stories

Ours is a relatively simple story, so whilst it is great that the media portray worst case scenarios, it's good to realise that the number one effect is hearing loss, which is the only... Read more
Lydia is one of non-identical twins, born on 6th April 2011 at 38 weeks in Welwyn Garden City with her brother Isaac.   Lydia was very small at 1.8kg (3lb15oz) so she was taken up... Read more

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