Our Stories

     
Written by her grandmother Jan – now a Trustee of CMV Action. 16th July 2012. That day changed our lives.   James (my son) and Lucy were expecting their first child, a girl. It was an easy pregnancy and Lucy was booked in to the local birthing centre. The delivery went well but as soon as Lyra was born it was evident she was a very sick...
Katie, Clara's mum, says .... 30 weeks into my pregnancy with my second child I was informed in a phone call that I had contracted CMV in pregnancy. I wasn't given any more information and so I googled, and what I found terrified me. We were referred to foetal medicine but, in the interim, which was only 5 days but felt like 5 years,...
It all started on the day of my 20 week scan which was also the day of my 20th birthday, the worst day of my life. I never had any worries as I had a straightforward 12 week scan, and had also recently felt him starting to move around. That had changed at my 20 week scan. There was very low amniotic fluid, the...
Alfie-CMV-Story
I wanted to share my CMV story, this is my wonderful little boy Alfie. I had a normal pregnancy and labour, I had Alfie at 11.30 at night and the next morning got him ready to take home. The doctor came round he had a purple rash under his skin an enlarged liver and spleen and was shaking has his blood sugars were low. We had to stay for more...
Ours is a relatively simple story, so whilst it is great that the media portray worst case scenarios, it's good to realise that the number one effect is hearing loss, which is the only thing that Ava was affected with as a result of CMV. Ava was our second born daughter in May 2011. My pregnancy was fairly complicated from the outset with...
Our family consists of my husband, Yoav, and our two daughters, Maya and Leila. Our youngest daughter, Leila, was born with congenital cytomegalovirus (cCMV) and has unilateral hearing loss as a result. Our beautiful girl was born without complications on a wonderful February day in 2014. The only niggle was that she failed her newborn hearing...

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Our Stories

Chloe
On the 20th January 1999 our lives changed forever. Our second daughter Chloe was born after a very difficult pregnancy and poor intrauterine growth. She was imediately taken to the SCBU... Read more
Lewis was born 3 weeks early on 23rd December 1997 following a normal healthy pregnancy. The labour was not easy, but relatively quick being 4 hours in total but he was in distress and... Read more

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