Our Stories

     
Luca was born on the 7th of January, 2007, just one day early, weighing 5lbs 6oz. Normal delivery and everything seemed ok. It wasn't until Luca was just over 6 months old (July 07) that I was noticing there was something wrong. Luca wasn't meeting his milestonesI s i.e. couldn't sit up, couldn't crawl, was making some noises and could stand...
Finley-and-Harley-cmv
My name is Julie Anne Stansfield and this is my story of when and how CMV changed my life. On the 12th February 2010, I found out I was pregnant, it seemed like a natural progression having been married for 8 months and we always wanted a family. We were surprised it happened so quickly but we were over the moon. We kept it quiet only telling...
My daughter was born with congenital CMV. I live in the U.S. and I had never heard of CMV before my pregnancy, nor had any of my friends or family who had normal pregnancies. Throughout my entire pregnancy, doctors and nurses could see there was something wrong in my ultrasounds but could not tell me what it was until around my 35th week of...
We noticed Ruby wasn't responding to sound when she was about 18 months old. My GP said she was fine and said I was a worrying first time mum. Without the support of our GP, we paid privately at the Portland Hospital in London to have a hearing test. We were given hearing tests and the Portland Hospital ran blood tests. They also went back...
Chloe
On the 20th January 1999 our lives changed forever. Our second daughter Chloe was born after a very difficult pregnancy and poor intrauterine growth. She was imediately taken to the SCBU. She was a poor feeder, could not control her body temperature, had a large liver and black spots and jaundice. All were put down to prematurity, but I had a...
Written by her grandmother Jan – now a Trustee of CMV Action. 16th July 2012. That day changed our lives.   James (my son) and Lucy were expecting their first child, a girl. It was an easy pregnancy and Lucy was booked in to the local birthing centre. The delivery went well but as soon as Lyra was born it was evident she was a very sick...

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Our Stories

Chloe
On the 20th January 1999 our lives changed forever. Our second daughter Chloe was born after a very difficult pregnancy and poor intrauterine growth. She was imediately taken to the SCBU... Read more
In my 1st pregnancy with my energetic lovely little boy Leo, I found out at 38 weeks that I had a liver condition affected by the pregnancy hormones called Cholestasis.  This... Read more

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