Our Stories

     
Noah was born on 30th January 2009 after a fairly unremarkable pregnancy and a fairly normal delivery (even with the cord round his neck!) He failed his newborn hearing screening test but we and the examiner put it down to congestion and arranged a retest. Following two retests and still no response in his left ear, they referred us to the...
My name is Amanda and I’m 36 years old.   After 3 years of trying for a baby through 2 rounds of IVF, I conceived twins.  At 5 weeks I broke out in a rash all over my arms and legs. Doctors kept telling me it's allergy. I spent days at the A&E and finally my GP ordered a blood test to check. Following weeks of investigations, I...
Written by her grandmother Jan – now a Trustee of CMV Action. 16th July 2012. That day changed our lives.   James (my son) and Lucy were expecting their first child, a girl. It was an easy pregnancy and Lucy was booked in to the local birthing centre. The delivery went well but as soon as Lyra was born it was evident she was a very sick...
We noticed Ruby wasn't responding to sound when she was about 18 months old. My GP said she was fine and said I was a worrying first time mum. Without the support of our GP, we paid privately at the Portland Hospital in London to have a hearing test. We were given hearing tests and the Portland Hospital ran blood tests. They also went back...
Lydia is one of non-identical twins, born on 6th April 2011 at 38 weeks in Welwyn Garden City with her brother Isaac.   Lydia was very small at 1.8kg (3lb15oz) so she was taken up to special care to be checked over, then was brought back to me as she was fine. The following day she had her newborn hearing screening, which she failed in...
My wife’s twelve week scan showed two little people waving at us, practically sat side by side!! I blinked thinking my eyes were blurred... and then told the sonographer that there was something wrong with the screen.  We were then congratulated for being expectant parents of identical twins.  My initial thoughts, I need more car...

Pages

     

Our Stories

I found out I had CMV in pregnancy and thought I would share my experience in the hope that it might help (sorry if this is a bit lengthy!) All had been well at my 12 week scan and I had... Read more
When Paul and I found out that we were expecting it was the happiest time of our lives we were so excited, the very next day I got in contact with the doctors and was booked in for my first... Read more

Registered charity no: 1171773