Our Stories

     
My daughter was born with congenital CMV. I live in the U.S. and I had never heard of CMV before my pregnancy, nor had any of my friends or family who had normal pregnancies. Throughout my entire pregnancy, doctors and nurses could see there was something wrong in my ultrasounds but could not tell me what it was until around my 35th week of...
Lewis was born 3 weeks early on 23rd December 1997 following a normal healthy pregnancy. The labour was not easy, but relatively quick being 4 hours in total but he was in distress and was very nearly a c section delivery. I went into early labour due to an infection.  He was born with the petechial rash which we were told was because...
In November 2011 we found out we were expecting our second child. We were so happy and excited to be completing our family. I had a dream, trouble free pregnancy just like I had had with my son. I did not have one day of illness. Everything was fine at our 20 weeks scan and our 4D scan at 28 weeks. I enjoyed my pregnancy and we all looked...
Ours is a relatively simple story, so whilst it is great that the media portray worst case scenarios, it's good to realise that the number one effect is hearing loss, which is the only thing that Ava was affected with as a result of CMV. Ava was our second born daughter in May 2011. My pregnancy was fairly complicated from the outset with...
Jamie-CMV
Hello, my son’s name is Jamie and he is 14 months old.  He was born with congenital CMV. Pregnancy wise, everything was normal, I had 5 scans, all fine... It was only 3 weeks before having my son that I got a sore throat but it was only during the nights though!! Strange!! I went to docs about it but was told it was just a virus so I...
Four weeks before the due date of our second child, Mylo, a breech scan showed he had excessive fluid on his brain and his weight had dropped dramatically from previous growth scans. Initially, the prognosis was poor and we were advised of the many life-limiting conditions he could be born with and, subsequently, we were...

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Our Stories

On the 27th June 2006, when Christian was born I remember the sheer delight on my husbands face, as we had our boy. He would be Eve's little brother who would be 2 the following day.... Read more
Four weeks before the due date of our second child, Mylo, a breech scan showed he had excessive fluid on his brain and his weight had dropped dramatically from previous growth... Read more

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