Our Stories

     
Mia
Hello, this is Mia, she is 6 months and 2 weeks old and I got diagnosed with cmv when I was 6 months plus pregnant. It was a horrible time we only found out as I got really poorly and could not get out of bed. I had to have loads of growth scans and scans on Mia with her brain and spleen. Several doctors said Mia had no signs of cmv in the womb...
It was my first pregnancy and it was all rather exciting, choosing names, all the tiny little clothes, and we’d been so looking forward to having the 20-week scan, desperate to get a glimpse of our growing baby. Ok, so it didn’t quite live up to my expectations on the day, the grumpy doctor made me cry (it didn’t take much), telling me off for...
Lewis was born 3 weeks early on 23rd December 1997 following a normal healthy pregnancy. The labour was not easy, but relatively quick being 4 hours in total but he was in distress and was very nearly a c section delivery. I went into early labour due to an infection.  He was born with the petechial rash which we were told was because...
  In 2015 we lost our daughter Leia to cmv. This is Leia. At 22 weeks I was diagnosed with CMV and Leia had Congenital CMV (passed through the placenta).   Most people have flu like symptoms, I had none. I will always have CMV, as long as I'm healthy it will stay dormant. My OB said you can be tested but you have to ask. My reply...
Our family consists of my husband, Yoav, and our two daughters, Maya and Leila. Our youngest daughter, Leila, was born with congenital cytomegalovirus (cCMV) and has unilateral hearing loss as a result. Our beautiful girl was born without complications on a wonderful February day in 2014. The only niggle was that she failed her newborn hearing...
Ben
Ben
On the 19th of March 2015, our little angel Ben was born sleeping at 30+5 weeks weighing 3lb 12&1/2 oz. We had a really healthy pregnancy but after a day of reduced movements & braxton hicks at 27+5 weeks I visited my maternity day unit to be monitored, which was fine, & sent for a scan for reassurance! At the scan it showed Ben to...

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Our Stories

Chloe
On the 20th January 1999 our lives changed forever. Our second daughter Chloe was born after a very difficult pregnancy and poor intrauterine growth. She was imediately taken to the SCBU... Read more
Ours is a relatively simple story, so whilst it is great that the media portray worst case scenarios, it's good to realise that the number one effect is hearing loss, which is the only... Read more

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