Our Stories

     
We found out in January 2017 just after Gabe’s first birthday that he had Congenital CMV.  I had a great pregnancy and a delivery with no problems. However he was born with tiny purple spots on his face and we were kept in overnight for observation – although no mention that it could be CMV. As the weeks went by Gabe started to smile and...
My son was born at 12.18am on the 28th July 2013 after what I thought had been a normal pregnancy. I got to Ipswich Hospital where I was preparing to give birth at around 11pm. During examination the midwife felt limbs so they scanned me to find it was his feet, the midwife pressed the alarm button. As quickly as possible they took me for a...
When I was pregnant my baby was measuring small and I had to go for weekly dopplers and fortnightly growth scans. A month before my due date, I was told there was no change in my baby's growth scans and that I was going to be induced. Rubie May was not growing and was distressed in the womb. Rubie May was born 4 weeks premature, weighing only...
Ben
Ben
On the 19th of March 2015, our little angel Ben was born sleeping at 30+5 weeks weighing 3lb 12&1/2 oz. We had a really healthy pregnancy but after a day of reduced movements & braxton hicks at 27+5 weeks I visited my maternity day unit to be monitored, which was fine, & sent for a scan for reassurance! At the scan it showed Ben to...
Ava_P_CMV
I found out at my 20 week scan that something wasn't quite right with my little girl. We were told her cerebellum in her brain was missing, and that this would affect her mobility and she would have learning difficulties, and we were referred to UCH hospital in London.    That crushed me - her brain. There's nothing they can do...
This is our Evalyn Rose, she was a long awaited baby.  My husband and I were told we could not have any more children due to fertility issues, we tried a round of fertility treatment which failed so decided to give up, time went on and we moved county, houses and jobs and it was then I found out I was pregnant! ... shocked! The pregnancy...

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Our Stories

This is our Evalyn Rose, she was a long awaited baby.  My husband and I were told we could not have any more children due to fertility issues, we tried a round of fertility treatment... Read more
Four weeks before the due date of our second child, Mylo, a breech scan showed he had excessive fluid on his brain and his weight had dropped dramatically from previous growth... Read more

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