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We recently held our first Annual General Meeting in Derbyshire, which was a great opportunity to discuss the outcomes of 2011, as well as the many things we have in the pipeline for 2012! Firstly, we are delighted to welcome two new trustees, Sarah Beadell and Liz Estall, to the board. Sarah will take on the role of Head of Fundraising, and Liz...
On Saturday 22nd October Emma & Andy Trim held a...

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CMV Action (formerly the UK Congenital CMV Association), has been supporting families and raising awareness since 1986, meaning that  in 2011, we are 25 years old! To celebrate, we have relaunched the website with a new look, a new name and a new logo.

One thing that will not change however, is our commitment to raising much-needed...

European Congenital Cytomegalovirus Initiative:
The European Congenital CMV Initiative (E.C.C.I.) is a network of professionals based throughout Europe with a united interest in congenital cytomegalovirus (CMV) infection. The group is composed of virologists, epidemiologists,...
At the moment the main treatment available for congenital CMV  is Ganciclovir. However it is an invasive treatment for a newborn baby (it is administered via intraveinous drip), and in some cases it can cause adverse effects. Also, Ganciclovir treatment must be started before a baby is 4 weeks old, leaving a very small window  of...
On Tuesday 23rd August Little Jack Horners Day Nursery in Etwall, Derbyshire held a Big Pants Day to raise funds.    Children attending the nursery had a fun day participating in sports activities and games. They decorated a huge pair of pants and invited all parents to attend...
On 29th July 2011, on a five-a-side football pitch in Reading a truly incredible feat of indurence kicked off.  Challenge:42 was a Guiness World Record attempt at the longest ever 5-aside match. .  The record had previously been set at a whopping 40 hours in Newcastle in May 2011 .  To qualify the match had to be played between only 2 teams, each...

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Our Stories

I found out I was pregnant just after my 21st birthday in May 2003. I wasn't sick or felt ill. As far as I knew, the pregnancy was going fine. As this was my first pregnancy, I didn't... Read more
From day 1 to 15 months old. My girl Violet.   Born on the leap year 29th February, full term at 39 weeks, weighing 5lbs7oz. Severely to profoundly deaf. Now weighing... well, I... Read more

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