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Tilly joins CMV Action as Awareness Officer

By January 19, 2024No Comments

Hi! My name is Tilly and I’m the new Awareness Officer for CMV Action. I am a CMV Mama myself
and therefore have direct and personal experience of the impact of CMV not just on a child but on
the whole family. CMV has changed my life in so many ways, some for the worse and some for the
better and I’m a firm believer in celebrating the little things and highlighting the joy and hope we
experience with our daughter. I have done my best over the years to advocate for better
awareness of CMV as so many families have no idea of what it is until they receive a diagnosis
and I’m absolutely thrilled to now have the opportunity to channel this through and for CMV Action.

In my spare time I volunteer for our local Deaf Children’s Society and Chair the Child Hearing
Services Working Group. I have recently started volunteering at my daughter’s specialist school for
Deaf children and absolutely love being around Deaf, BSL using children. I am learning BSL myself
and outside of all things Deaf I love a good history book!

Please always feel free to reach out to us with any questions or concerns and if you’d like to help
raise awareness by sharing you story we’d love to hear from you!