Mum Sharon talks about her devastating loss

     
Baby_Oscar

Wendover News

June 25th 2015

www.wendovernews.co.uk/news/CMV-what-is-it

Pregnant? Thinking about getting pregnant? Got young children? Read here about CMV!

In fact, what is CMV? www.cmvaction.org.uk 

The message...wash hands! Don't share! CMV is the leading cause of childhood defects, yet no one knows enough about it....

After trying for a baby for two years, we luckily became pregnant with our first child just two days before we signed the paperwork to undergo IVF treatment. A lucky miracle I call it.

I'm also a midwife of eleven years, at Stoke Mandeville, with experience mostly on the labour ward but also in teaching and more recently community, so seeing people everyday and them telling me their 'lucky' stories of falling pregnant made my two years very long indeed.

However, we were lucky, we had no bleeding, no blood pressure issues, the downs screening came back very low and despite sickness that lasted until 22 weeks and horrendous heartburn, I couldn't complain!
My midwife started measuring me at 26 weeks, when she picked up that I was SFD (small for dates.) I also never felt my baby move.

I started undergoing serial growth scans. I send my own patients for these all the time and they generally come back fine, so I wasn't worried. My consultant did a TORCH blood screen for infections. The TORCH screen is a group of blood tests that check for several different infections in a newborn. TORCH stands for toxoplasmosis, rubella, cytomegalovirus, herpes simplex, and HIV, but it can also include other newborn infections.

Well I knew I was fit and healthy and didn't have any infections, but it's only a blood test, so why not?

That's when my world crumbled. I had had CMV at some point during the first trimester, meaning my baby could be infected. Although reassurances told us he may not be 'affected.' Whilst I'd heard of it, I had never known anyone who had had CMV. How on earth had I picked this up? Where had it come from? This was my fault. Of course I've since gone on and read about it more and realise how easy it is to contract and with all my work with families and children, who knows where it came from?

We started googling, and found that he may have some learning disabilities or mild hearing loss, not a problem we thought.

The consultant suggested an amniocentesis, which we had at 33+1 weeks.
We also had a brain scan which now showed ventriculomegaly, some brain abnormalities.
We then went onto have an MRI scan at the John Radcliffe Hospital in Oxford.
Our baby was disagnosed with severe CMV, there was poor growth, enlarged liver / abdomen, a small head and no brain activity at all. 

Our beautiful baby Oscar William, was stillborn at 33+6 weeks, on 9th March 2015, our shining star. 

His death is still, obviously, fresh and every day is a struggle, from simply watching baby adverts on TV, to seeing friends with babies or looking through Oscar's photos.

I'm now on maternity leave, and am so keen to get some awareness out there and support CMV. www.cmvaction.org.uk

     

Our Stories

Evie_CMV_5
My name is Alex and this is the story of how I came to learn about CMV. January 13th 2014, I was stood staring at the positive pregnancy test in my hand. After 5 months of trying for our... Read more
Having a child is always a life-changing event, but when our second son Toby was born, we had no idea just how much our future would be altered forever. On the 5th April 2014, Toby shot... Read more

Latest Events

Registered charity no: 1171773