CMV websites

     
European Congenital Cytomegalovirus Initiative:
The European Congenital CMV Initiative (E.C.C.I.) is a network of professionals based throughout Europe with a united interest in congenital cytomegalovirus (CMV) infection. The group is composed of virologists, epidemiologists, immunologists, obstetricians and paediatricians whose aim is to promote awareness of congenital CMV and support and encourage research initiatives into this important infection. Information on latest research, info etc.
Website: www.ecci.ac.uk
 
National Congenital CMV Disease Registry - Baylor (USA):
The registry is a research program working to learn more about those children born with symptoms of congenital CMV disease. Aside from research, the National Congenital CMV Disease Registry provides an outreach program consisting of this web site, written educational material, and an annual newsletter, CMV Updates for the purpose of educating health care professionals, families, and all others interested in learning more about congenital CMV disease. Additionally, we established and maintain a parent support network as a forum where parents of children congenitally infected with CMV can contact other parents dealing with the challenges of raising a child born with CMV. Parents from all over the world including UK.
Centers for Disease Control and Prevention
This is a US agency which focuses on research and support for disease prevention.  They have have information on many different aspects of congenital CMV and podcasts about how you can help to avoid infection whilst pregnant.  Do note that much of the information will be specific to the US health system.
Congenital Cytomegalovirus Foundation (USA):
Preventing congenital CMV through Awareness, an American website hosted by professionals and parents together. A wealth of information, features, advice, links etc
Stop CMV (USA):
Set up by the mum of CMV twins, this website offers a wealth of information and support materials. Get info and links, buy stop CMV t-shirts, download posters, web banners etc. Become a stop CMV rep - they would love to spread out to the rest of world. A very active Awareness Group and website.
Website: www.stopcmv.com

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Our Stories

  In 2015 we lost our daughter Leia to cmv. This is Leia. At 22 weeks I was diagnosed with CMV and Leia had Congenital CMV (passed through the placenta).   Most people have... Read more
Jamie-CMV
Hello, my son’s name is Jamie and he is 14 months old.  He was born with congenital CMV. Pregnancy wise, everything was normal, I had 5 scans, all fine... It was only 3 weeks... Read more

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