Doctors are planning to launch a database which will allow information recorded in routine clinical care to be entered from all babies with a confirmed diagnosis of congenital CMV infection. The information, which will be collected from all over the UK and Europe, will provide data for hospitals to assist them with planning for care and allow doctors to give better information to future parents whose baby has a diagnosis of congenital CMV infection on likely effects of the infection and optimum treatment options.
The database will be designed so that an individual baby will not be able to be identified. The database will be password protected and the data kept within a hospital/university and not shared with any other organisations.
The team working on the database would like to obtain parents' views on information on their child being used in this way and have asked us, CMV Action, to share with you a very short questionnaire to capture your views. Please click here to access the questionnaire: