Social Media Support Groups

     

Listed here a some of the support groups and social media pages available to help people affected by CMV.

We are not responsible for the content of theses groups and external links.

CMV Action UK

CMV Mommies 

CMV Family Support

Supporting UK CMV families

CMV Friends and Family US

CMV Advocacy Group USA

Cortical Visual Impairment

Polymicrogyria Family Support UK

PMG Awareness Organisation USA

CMV Polish group      

CMV Families Ireland  

 

Social Media Information and equipment groups

congenital CMV news           

UK DLA Parent Sharing 

For sale preloved special needs equipment 

Special needs equipment Buy Sell Swap   

Fred Storey Super Saver Page 

Children’s DLA discount tips  

     

Our Stories

Luca was born on the 7th of January, 2007, just one day early, weighing 5lbs 6oz. Normal delivery and everything seemed ok. It wasn't until Luca was just over 6 months old (July 07) that... Read more
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After trying for a baby for two years, we luckily became pregnant with out first child just two days before we signed the paperwork to undergo IVF treatment. A lucky miracle I call it. I... Read more

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