Social Media Support Groups

     

Listed here a some of the support groups and social media pages available to help people affected by CMV.

We are not responsible for the content of theses groups and external links.

CMV Action UK https://www.facebook.com/CMVAction

CMV Mommies https://www.facebook.com/groups/218264801533244/

CMV Family Support https://www.facebook.com/groups/828342997176100/

Supporting UK CMV families https://www.facebook.com/groups/372198926159/

CMV Friends and Family US https://www.facebook.com/groups/417930608257146/

CMV Advocacy Group USA https://www.facebook.com/groups/111579365608685/?fref=ts

Cortical Visual Impairment https://www.facebook.com/groups/169027052659/

Polymicrogyria Family Support UK https://www.facebook.com/groups/344031389038023/

PMG Awareness Organisation USA https://www.facebook.com/groups/PMGawareness/

CMV Polish group      https://www.facebook.com/groups/1012619822134426/?__mref=message_bubble

CMV Families Ireland   https://www.facebook.com/groups/256608334755554

 

Social Media Information and equipment groups

congenital CMV news      https://www.facebook.com/search/top/?q=congenital%20cmv%20     

UK DLA Parent Sharing  https://www.facebook.com/groups/141964685818509/

For sale preloved special needs equipment  https://www.facebook.com/groups/100310213409356/

Special needs equipment Buy Sell Swap    https://www.facebook.com/groups/SNEUK/

Fred Storey Super Saver Page  https://www.facebook.com/groups/433614973384226/

Children’s DLA discount tips  https://www.facebook.com/groups/28639938907/

     

Our Stories

baby_Oscar_shiningstar
After trying for a baby for two years, we luckily became pregnant with out first child just two days before we signed the paperwork to undergo IVF treatment. A lucky miracle I call it. I... Read more
We noticed Ruby wasn't responding to sound when she was about 18 months old. My GP said she was fine and said I was a worrying first time mum. Without the support of our GP, we paid... Read more

Latest Events

Registered charity no: 1171773