Social Media Support Groups


Listed here a some of the support groups and social media pages available to help people affected by CMV.

We are not responsible for the content of theses groups and external links.

CMV Action UK

CMV Mommies

CMV Family Support

Supporting UK CMV families

CMV Friends and Family US

CMV Advocacy Group USA

Cortical Visual Impairment

Polymicrogyria Family Support UK

PMG Awareness Organisation USA

CMV Polish group

CMV Families Ireland

Israel CMV Support


Social Media Information and equipment groups

congenital CMV news     

UK DLA Parent Sharing

For sale preloved special needs equipment

Special needs equipment Buy Sell Swap

Fred Storey Super Saver Page

Children’s DLA discount tips


Our Stories

I found out I had CMV in pregnancy and thought I would share my experience in the hope that it might help (sorry if this is a bit lengthy!) All had been well at my 12 week scan and I had... Read more
After trying for a baby for two years, we luckily became pregnant with out first child just two days before we signed the paperwork to undergo IVF treatment. A lucky miracle I call it. I... Read more

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