Our Mission & Annual Plan


Our mission is to limit the devastating impact of CMV  for those currently affected and for future generations.

Educate, Vaccinate, Eradicate.

Our Plans are:

1) To support families affected by CMV

  • Provide advice and information
  • Enable members to support each other by connecting families living in the same area or experiencing the same issues
  • Advocate on behalf of families affected by CMV
  • Empower and support parents to work effectively with professionals

2) To educate professionals, parents-to-be and the general public about prevention of CMV

  • Run campaigns to increase awareness amongst pregnant women about the risks of cCMV infection and the simple hygiene measures that can help prevent it
  • Develop an engagement programme to increase awareness amongst professionals and agencies who work with pregnant women

3) To support the development and implementation of research into better testing, treatment and management of CMV

  • Support recruitment into trials
  • Support research bids
  • Disseminate research evidence in lay terms to parents, journalists and policy makers
  • Campaign for relevant bodies to implement research findings
  • Campaign for better and more consistent management of CMV

4) Raise awareness of the need for a vaccine

  • Understand public views
  • Develop a long-term strategy for the next 10 years
  • Run targeted communications work

5) To build the capacity of CMV Action

  • Develop planning approach
  • Increase people resources
  • Raise funds
  • Improve management practices and efficiency




Our Stories

Our names are Dawn Bean, 43 and Daniel Hunt, 37. We are lucky to be the proud parents of Joseph (Joey) Hunt, 2 (02.01.2015) who has a super sister, Daisy, 14 and a brilliant brother, Oliver... Read more
I found out at my 20 week scan that something wasn't quite right with my little girl. We were told her cerebellum in her brain was missing, and that this would affect her mobility and... Read more

Registered charity no: 1171773